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Care Management ~ Eldercare Advocacy ~ Dementia Care

Serving families in Palm Beach, Martin and Port St. Lucie counties

Request a Free Consultation ~ (561) 277-9544

Take Back Your Rights as a Caregiver!

Judie Rappaport
February 17, 2015

Dear Judie:

 

Dad (86) has Parkinson’s; Mom (84) tries to care for him. In reality, I’m the primary caregiver for both of them and I’m happy to do so. My problem is my parents’ friends who visit frequently to show love and concern for Mom and Dad, but ignore my needs totally. They ask; “Can you brew some coffee for us Jeannie?”,or  “We didn’t have time for lunch, how about some sandwiches Jeannie?”. They’re so selfish they don’t notice they’re adding to my burden. Couldn’t they say; “If you have time?”, or “would you mind?”. Don’t I have any rights? Like saying; “Sorry, I’m too tired.”. 

 

-Roz,  PSL

 

Dear Jeannie:

 

Yes, you and other caregivers have rights and we urge you to claim them.  Example: the basic freedom to politely answer; “I can’t right now, but you’re welcome to make coffee (or make yourself  sandwiches).”.  At the very minimum, your rights include:

 

1.) Personal time to maintain your own quality of life

2.) Physical and emotional respite

3.) Respect from your parents, their friends, family members, and health care professionals

4.) An accurate diagnosis and appropriate follow-up healthcare for both you and your parents

5.) The freedom to seek help whenever you need it

6.) Your right to maintain balance in your life  


For a complete Caregiver Bill of Rights, try http://www.myparkinsons.org/parkinsons-disease-caregiver-commentary/caregiver-bill-of-rights.shtml

 

Judie Rappaport, President & Founder
Preferred Lifestyle Services

Trust Yourself. You Have the Knowledge, Insight,
and Power to make the right decisions for you and your parent. ©

 
 

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